The Disability Rights Movement

From Charity to Confrontation
Updated Edition

Doris Zames Fleischer and Frieda Zames
Frieda Zames is the recipient of the Eileen Healy Public Service Award, 2003
Book Cover

PB: $35.95
EAN: 978-1-4399-0744-3
Publication: Jun 11

HC: $91.50
EAN: 978-1-4399-0743-6
Publication: Jun 11

Ebook: $35.95
EAN: 978-1-4399-0745-0
Publication: Jun 11

360 pages
7 x 10

A newly updated account of the struggle for disability rights in the U.S.


In this updated edition, Doris Zames Fleischer and Frieda Zames expand their encyclopedic history of the struggle for disability rights in the United States, bringing us up to date with the past ten years of disability rights activism. The Disability Rights Movement includes a new chapter on the evolving impact of the Americans with Disabilities Act, the continuing struggle for cross-disability civil and human rights, and the changing perceptions of disability. The authors provide a probing analysis of such topics as deinstitutionalization, housing, health care, assisted suicide, employment, education, new technologies, disabled veterans, and disability culture. Based on interviews with over one hundred activists, The Disability Rights Movement tells a complex and compelling story of an ongoing movement that seeks to create an equitable and diverse society, inclusive of people with disabilities.


"More than a history, The Disability Rights Movement documents the wrenching evolution of attitudes: From isolation and charity to confrontation and rights; from sheltered workshops to independent living; from telethons of pity to technology's power; from 'cripples' and 'invalids' to People with disabilities! Comprehensive and well-written, Fleischer and Zames capture the substance and spirit of the disability rights movement and bring it to life." Frederick A. Fay, Ph.D., Chair, Justice for All, and disability rights advocate for four decades

"Doris Zames Fleischer and Frieda Zames take the reader on a guided tour through the still-brief history of the Disability Rights Movement, and they draw upon many first-person accounts to enrich the narrative. Although I was 'present at the creation' of much of this, I still learned a great deal. A unique feature of this book is the first-hand recounting of the remarkable work of the Disabled in Action (DIA) of New York. This group never gave up in their struggle to make the nation's biggest city accessible, despite enormous odds and powerful political opposition. Their story alone is worth the price of this book." Frank G. Bowe, Ph.D., Professor, Hofstra University, and author of Physical, Sensory and Health Disabilities

"Frieda Zames and Doris Zames Fleischer have crafted the most comprehensive history of the disability rights movement to date. Many firsthand sources and never-before-published interviews make this a must-read for anyone seeking to understand the roots of today's most pressing disability rights issues." Mary Johnson, Editor, Ragged EDGE

"This eye-opening work...offers one of the first thorough histories of a movement for civil rights that has profoundly changed America. ... A fascinating book." The Sacramento Bee

"Here at last is a book about our civil rights movement written by one of us: Frieda Zames, a polio survivor and activist....The Disability Rights Movement stands out for its insiders' point of view and the sheer thoroughness of ground covered. ...the authors turn what could have been a rather dry historical book into one that absolutely compels us to read on. They accomplish this not only through meticulous research, but also through their inclusion of information and opinions gleaned from interviews with movement leaders and other people whose lives have been directly affected. ...(the book) is far more than just a history book. It's a cautionary tale of rights won and now in jeopardy. It's a tale of a people who have won some legal battles but still face mass discrimination each day. ... It is an excellent beginning..." Sally Rosenthal, Ragged Edge

"Fleischer and Zames offer an encyclopedic treatment of the development of the disability rights movement...(They) provide a useful starting point for inquiries into a plethora of disability rights issues." New Political Science

"...the book plays a unique role in the literature on the disability movement because it is forward looking as well as historical in its approach. It is also extraordinarily well researched across a wide range of domains and contains a good bit of thoughtful analysis..." Social Service Review

"Fleischer and Zames's text deserves the label 'comprehensive history,' and it is a significant contribution to the literature of Disability Studies." Argumentation and Advocacy

" excellent primer on a wide variety of current disability issues..." Psychiatric Services

"Fleischer and Zames' concise and elegant overview of the current state of the disability rights movement...fills a huge void in the literature and hopefully will provoke greater examination of the issues at stake." Socialism and Democracy

"...makes an impressive contribution to the understanding of how social movements arise, organize and effectively address entrenched challenges of discrimination and social injustice.... the book is readable and engaging. It should be consulted by anyone interested in knowing how people who are discriminated against can overcome and bring about substantive social change." Journal of Sociology and Social Welfare

Table of Contents

Personal Notes
Preface to the Updated Edition
Preface to the First Edition
Abbreviations and Acronyms

1. "Wheelchair Bound" and "The Poster Child"
FDR, the "Cured Cripple" • League of the Physically Handicapped • The March of Dimes • Parent-Initiated Childhood Disability Organizations • The Poster Child and the Telethon • Changing Views of Disability in the United States

2. Seeing by Touch, Hearing by Sign
Blindness and Deafness: A Comparison • Sign Language and Oralism • Braille and Talking Books • Sheltered Workshops • The Lighthouse • Mobility for Blind People: Guide Dogs and White Canes • Jacobus tenBroek and the National Federation of the Blind • NYC Subway Gates: A Controversy in the Blind Community • NFB: Trailblazer for Sections 504 and 501 • NFB and ACB: Different Approaches to Blindness • Deafness as Culture • American Sign Language • The Gallaudet University Uprising • Black Deaf Advocates • Education of Deaf Children • Helen Keller, the Social Reformer

3. Deinstitutionalization and Independent Living
Deinstitutionalization • Early Accessibility Efforts in the Colleges • Ed Roberts and the Independent Living Movement • Proliferation of the Independent Living Concept • Characteristics of Independent Living Centers • Independent Living as an Extension of Rehabilitation • Evaluation of the Independent Living Movement • Independent Living and the New Disability Activism

4. Groundbreaking Disability Rights Legislation: Section 504
The Cherry Lawsuit for the Section 504 Regulations • Section 504 as a Spur to Political Organizing • ACCD, Propelling Section 504 • The Section 504 Demonstrations • The Transbus Controversy • Accessible Transit and New York City • Bay Area Rapid Transit (BART) • California Accessible Buses • Mainstreaming Public Transit • The Civil Rights Significance of Accessible Transportation

5. The Struggle for Change: In the Streets and in the Courts
Disabled In Action • New York Lawyers for the Public Interest • Recognizing Disability as a Civil Rights Issue • Disability Rights Education and Defense Fund • The Need for Disability Rights Attorneys • ADAPT • Justice For All

6. The Americans with Disabilities Act
Enacting the ADA • The ADA and Section 504 • Title I: Employment • Title III: Public Accommodation • Title II: Public Services (State and Local Government) • Title II: Public Transportation • Title IV: National Telephone Relay Service • Title V: Miscellaneous • The Supreme Court and the ADA • The Myth of "The Disability Lobby" • Backlash • Every American's Insurance Policy Log

7. Access to Jobs and Health Care
Employment Discrimination • Affirmative Action • Disability Employment in Corporate America • Employment of People with Developmental Disabilities • Employment of People with Psychiatric Disabilities • The Criminalization of People with Psychiatric Disabilities • Different Approaches to Psychiatric Disabilities • Mangled Care • A Two-Tier Health Care System • People with Special Needs in Managed Care • An Arbitrary Patchwork • Falling through the Cracks: Children with Special Health Needs • Long-Term Care in the Community • Health Policy Reforms • The Nexus between Jobs and Health Care

8. "Not Dead Yet" and Physician-Assisted Suicide
Opposition to "the Death Train" • The Supreme Court • AIDS Activists • Pain Management • Focus on Cure: A Pernicious Message • The Eugenics Movement and Euthanasia • The Politics of Physician-Assisted Suicide • Netherlands "Slippery Slope" vs. U.S. "Political Strategy" • First-Year Report on Physician-Assisted Suicide in Oregon • Legalizing Disability Discrimination • Dangers of an Inflexible Law • "A Better Solution" • The Distinction between Severe Disability and Terminal Illness

9. Disability and Technology
Universal Design • Accessible Taxis • Teletypewriters and Relay Systems • A Clash of Cultures • The One-Step Campaign • Wheelchair Ingenuity • Accessible Classrooms and Laboratories • The Computer as an Accommodation • Psychopharmacology • Bioethical Dilemmas • The Internet and a Miracle Baby • Medical and Genetic Information • "Slash, Burn, and Poison" • Transforming Scientific Orthodoxy: AIDS Activism • Toward a New Vision: Three Queries

10. Disabled Veterans Claim Their Rights
Legislation and Self-Advocacy • Rehabilitation: The Man, Not the Wound • Paralyzed Veterans of America • Automobiles: Opening "New Vistas" • The Pattern of Denial • Atomic and Chemical Guinea Pigs • Holding a Nation Accountable

11. Education: Integration in the Least Restrictive Environment
A "Quiet Revolution" • Enforcing the IDEA: Early Efforts • Least Restrictive Environment • An Appropriate Identity • The IDEA in the Courts • The Special Education Controversy • Somnolent Samantha • A Microcosm of the Real World

12. Identity and Culture
Three Strands of the Movement • Disability Pride: Celebrating Difference • Changing Perceptions and the Media • Assessment of the Movement • A Stealth Movement

13. Disability Rights in the Twenty-First Century
Olmstead and the Community Choice Act • "Visitability" • Psychiatric Survivors and Consumers • The New Eugenics • Physician-Assisted Suicide • Media, Technology, and Disability Culture • Disabled Veterans • Activists Assess Progress in Securing Disability Rights • Disability Rights Attorneys Speak • Perceptions of Disability


About the Author(s)

Doris Zames Fleischer, a full-time member of the Department of Humanities at New Jersey Institute of Technology since 1988, has written and lectured widely on issues related to disability rights.

The late Frieda Zames, Professor Emeritus of Mathematics at New Jersey Institute of Technology, was a much honored pioneer in securing rights for people with disabilities.